Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?

The moral and medical necessity to save lives is a driving force, constantly accelerating technological progress. The different medical procedures, tests and treatments that are now available prior to birth have shown the potential to increase the understanding of chronic genetic conditions. However...

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Main Author: L?pez Celi, Mar?a Bel?n
Other Authors: Graeme, Laurie
Format: Tesis de Maestría
Language:eng
Published: Edinburgh / Universidad de Edimburgo 2017
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Online Access:http://repositorio.educacionsuperior.gob.ec/handle/28000/4288
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spelling oai:localhost:28000-42882017-06-20T08:02:37Z Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person? L?pez Celi, Mar?a Bel?n Graeme, Laurie DERECHO M?DICO MODIFICACI?N GEN?TICA IDENTIDAD PERSONAL IDENTIDAD GEN?TICA INTEGRIDAD GEN?TICA DERECHOS REPRODUCTIVOS The moral and medical necessity to save lives is a driving force, constantly accelerating technological progress. The different medical procedures, tests and treatments that are now available prior to birth have shown the potential to increase the understanding of chronic genetic conditions. However, considering the possibility of applying some of these techniques in clinical trials requires a different analysis of the persons that may be harmed by these techniques. In this paper, we will be addressing an illustrative case in which gene editing techniques in human embryos are accepted and allowed1 in clinicaltrials. We will be arguing whether the use of this technique will possibly harm future persons? genetic integrity (who will be born with a genetic modification). Genetic integrity is the condition of the genome being ?whole? or undivided,2 which includes the combination of all the different criterions of personal identity (including traditional features of identity, genetic identity, and the additional properties of identity) . For our illustrative case, the subjects who are being harmed are future persons, because even if they do not exist at the time of the genetic modification, they do exist as genetic persons. Thus, the intrusion of someone over future persons? genetic makeup will inflict harm on their genetic integrity. In Chapter 1, we will address the development of prenatal genetic tests and diagnosis techniques. In Chapter 2, we will define who we think future persons are, will highlight some of the important debates that have been raised around the concept, and will consider if we owe any duty to them now. In Chapter 3, we will discuss the possible ways future persons may be harmed and will define a baseline for this possible harm. In Chapter 4, we will address the possible ways to extend the application of some of the current legal frameworks in order to be applicable for future persons. Finally, we will conclude that the harm to future persons? genetic integrity can only be avoided by banning the technique, thus, the law needs to extend the protection to future persons so the dignity and living vital body of someone who will exist in the future will be safeguarded in advance. 2017-06-19T20:50:35Z 2017-06-19T20:50:35Z 2016-08-08 masterThesis L?pez Celi, Mar?a Bel?n. (2016). Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?. (Trabajo de titulaci?n de la Maestr?a en Derecho M?dico y ?tica). Universidad de Edimburgo. Edinburgh. 60 p. http://repositorio.educacionsuperior.gob.ec/handle/28000/4288 eng openAccess http://creativecommons.org/licenses/by-nc-sa/3.0/ec/ 60 p. Edinburgh / Universidad de Edimburgo
institution SENESCYT
collection Repositorio SENESCYT
biblioteca Biblioteca Senescyt
language eng
format Tesis de Maestría
topic DERECHO M?DICO
MODIFICACI?N GEN?TICA
IDENTIDAD PERSONAL
IDENTIDAD GEN?TICA
INTEGRIDAD GEN?TICA
DERECHOS REPRODUCTIVOS
spellingShingle DERECHO M?DICO
MODIFICACI?N GEN?TICA
IDENTIDAD PERSONAL
IDENTIDAD GEN?TICA
INTEGRIDAD GEN?TICA
DERECHOS REPRODUCTIVOS
L?pez Celi, Mar?a Bel?n
Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
description The moral and medical necessity to save lives is a driving force, constantly accelerating technological progress. The different medical procedures, tests and treatments that are now available prior to birth have shown the potential to increase the understanding of chronic genetic conditions. However, considering the possibility of applying some of these techniques in clinical trials requires a different analysis of the persons that may be harmed by these techniques. In this paper, we will be addressing an illustrative case in which gene editing techniques in human embryos are accepted and allowed1 in clinicaltrials. We will be arguing whether the use of this technique will possibly harm future persons? genetic integrity (who will be born with a genetic modification). Genetic integrity is the condition of the genome being ?whole? or undivided,2 which includes the combination of all the different criterions of personal identity (including traditional features of identity, genetic identity, and the additional properties of identity) . For our illustrative case, the subjects who are being harmed are future persons, because even if they do not exist at the time of the genetic modification, they do exist as genetic persons. Thus, the intrusion of someone over future persons? genetic makeup will inflict harm on their genetic integrity. In Chapter 1, we will address the development of prenatal genetic tests and diagnosis techniques. In Chapter 2, we will define who we think future persons are, will highlight some of the important debates that have been raised around the concept, and will consider if we owe any duty to them now. In Chapter 3, we will discuss the possible ways future persons may be harmed and will define a baseline for this possible harm. In Chapter 4, we will address the possible ways to extend the application of some of the current legal frameworks in order to be applicable for future persons. Finally, we will conclude that the harm to future persons? genetic integrity can only be avoided by banning the technique, thus, the law needs to extend the protection to future persons so the dignity and living vital body of someone who will exist in the future will be safeguarded in advance.
author2 Graeme, Laurie
author_facet Graeme, Laurie
L?pez Celi, Mar?a Bel?n
author L?pez Celi, Mar?a Bel?n
author_sort L?pez Celi, Mar?a Bel?n
title Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
title_short Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
title_full Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
title_fullStr Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
title_full_unstemmed Should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
title_sort should the provision of prenatal genetic testing and diagnosis take into account the rights and interests of the future person?
publisher Edinburgh / Universidad de Edimburgo
publishDate 2017
url http://repositorio.educacionsuperior.gob.ec/handle/28000/4288
_version_ 1634995236456366080
score 11,871979